Growing Up with a Disability
Terry was born with a disease called osteogenesis imperfecta, sometimes referred to as OI or brittle bones disease. The genetic disease causes Terry’s bones to be prone to fractures.
Terry described living with OI, saying, “I've had several orthopedic surgeries with rods put in my legs and spine. I've had over 110 fractures.” She continued, saying, “I had most of my fractures when I was very young, and that’s the reason I'm in a wheelchair.”
Life Before a Wheelchair Accessible Vehicle
Even though Terry has lived her whole life with a disability, she spent many years driving a non-accessible Honda Odyssey until an accident a few years ago and the persistent ‘nudge’ of her boss at the time led her to an accessible vehicle and adaptive driving equipment.
“Prior to my accident, I would go to the Abilities Expos that are in Arizona. I had gone for several years, and I picked up brochures. I thought, ‘hopefully I'll never need this.’ I was still in that mindset: ‘I don't need anything on my car. I can do it,’ [but] I'm going to pick up some information. You never know,” she said.
A few years ago, while Terry was traveling to New York City on business, the shower seat in her ADA-compliant hotel room collapsed, and she broke her wrist.
Having brittle bones disease meant Terry needed multiple surgeries. She described the experience, saying, “I was getting in and out of the car by lifting myself. When my arm was messed up, I couldn't do that. I went six months without being able to drive. In other words, when I got injured without adaptive equipment, it was game over. I wasn't going anywhere.”
Working at the time, Terry described her boss encouraging her to get adaptive equipment so she could drive.
“I had a boss who told me I was capitulating by being so stubborn about not getting adaptive equipment. I think now in hindsight, he was right,” she said.